Tuesday, November 24, 2015

Hold on to your socks, this is a long one! Moving Day, New Hair, 2nd Chemo, A Terrible Awful Bad Day

Woow!  Sorry for the delay, but let's get to it because there is sooooo much to tell.  Let's go back in time!

MOVING DAY!

The last week of October I moved into my new place with the help of some very special people.  My cousin Oliver and his nephews came through after a snafu with PODS and the necessity to have the unit emptied and picked up by Saturday spoiling the plan that my cousin Zannie and his brother-in-law Corey were to unload and help with the move-in.  So the crew of 3, unloaded the POD into the house on Wednesday.  Zannie & Corey came out the next day and put up my beds, put up bookshelves and shelving units and a few random things that need to be done.  And then the big gun came to play, my lil sis Victoria stepped up and came out on Friday and together she & I unloaded 99% of the boxes in this house.  She was on a mission to get it all done, which she did and and was able to go home on Sunday to relax after some major work put in, there is no way I could've done any of it without her!   My homie Tashalon came by to pitch in but I was pooped so we just hung out, passed out candy, and laughed about old times and caught up on all the new stuff.  She was good for my soul!  Just another reason I moved to TX, to be close to those types of folks to help me recenter and reconnect with my friends and family.  It was so nice to have help that I didn't have to beg to come out, they just showed up!  I love family!

NEW HAIR!

So the 1st week of November I went to the Cancer Center to the Women's Boutique for an appointment to get a wig!  I hurried to my appointment, but was disappointed to find out that she was unable to get my wig approved.  BUT WAIT, THERE'S MORE!  The light bulb went off over her head, and she said, "I know where I can get you a free wig!!"  We walked down the hall to another office and there they were, a few boxes of wigs.  I asked for a short curly wig and the 1st one that they pulled out....well just picture Mama from Mama's Family!  Um, Hell to da naw naw naw!!!!  LOL, then they pulled a little number that reminded me of how I used to wear my hair back in the late 90's, not quite as bad as you think but you be the judge, I'm going to post a link (if I can remember how!).  Hey, for free, I couldn't ask for more than that!  She informed me that the cosmetologist could customize the wig for me, so I asked her if the cosmetologist could buzz my head, my hair was starting to shed more and I like having the control that I cut my hair and not freaking out every morning in the shower or whatever.  So after waiting a few mins, I sat in the chair to get my head shaved!


In the words of a friend, good thing I have a pretty face and small ears!!!  LOL

So after buzzing my hair, she put the wig on my head and trimmed the bangs and styled accordingly.

After nice banter and comments on my smooth skin for a 43 year old, of course I told her BLACK DON'T CRACK!!!!  She said, Your Right!  Then, she turned around and said, WAIT, who's wig is this?  Well, it was the free wig that Madeline had gotten for me, the wig you see here was not that one!  After realizing it was a sample that she had just been sent, she said that God must've wanted me to have 2 wigs!  Won't He do it!!!!  Can you tell the difference, ok there is a little difference but not much!


So I have been wearing the second wig as my everyday wig.  I'll skip ahead since I'm on the hair subject.  Last week I went to a beauty supply and found a short curly wig, its a little closer to me than the others but I'm still on the hunt for that short curly Whitney wig from Bodyguard!  Inbox me for my address if you want to send it to me!  LOL


2ND CHEMO

So, the next week, Mom & I headed to TX Oncology for my 2nd Chemo.  On my visit with the Dr. she informed me that I was taking the same chemo meds that I took the first time.  My records from City of Hope stated something different than what my VA Cancer Institute, so I am taking the same chemo.  Not to worry because it worked the first time right....its working again!  The tumor has shrunk by 50%!!!!!  Woohoo!  Wait, not so fast, what is this?  Why are your glucose levels so high?  You need your PCP to check this out, oh, you don't have one, I can recommend someone.  The rest of the day went as a typical chemo day goes, with a stop at some store.  It wouldn't be chemo day without a stop somewhere before going home!  Friday shot of Neulasta and lots of resting around my house.  Mama & Stepdad took good care of me!  Back to work on Monday, I was a little sick but it was my fault for not taking my anti-nausea meds like I was supposed to Sunday evening and Monday morning.  Once I realized what I had done, took my dose, I felt better by the next morning.  I'm doing well and working.

A TERRIBLE AWFUL BAD DAY!!!

So today is the day I meet my new Internist, Dr. Gary Goff.  I left work on time (in my mind my appt was at 10am) at 9:59 I was circling Presbyterian Hospital for the 3rd time looking for Professional Bldg. 4,  I finally found it ACROSS THE STREET with no arrows or signs.  Finally found parking in the garage found the way into the building and found the elevator.  Once I found the office, I went in and they of course asked for my ID and insurance card which is lost and I'm still waiting for them to send a new one.  Oh, I got my new dental card yesterday!


ANYWAY!!!!  I call my oncologist office and they said they would send the card but they didn't, I am filling out the forms and she ask again, I have my group # and ID # but that's no good because it's BCBS of TX.......UGH!!!!  The nurse comes to get me but the front desk receptionist said wait because they didn't want me to have to pay out of pocket for the visit.  I the radiology office in Richmond that initially diagnosed me and they faxed over a copy.  The nurse took me back and in a room and before she could take my blood pressure, the receptionist came and said it was a copy of my vision card!  They asked if I could go online to get a temporary card.  So here I am in the exam room trying to log on to Anthem.com from my phone, let's just say that by the time the Dr. came in I was in tears with frustration.  He told me to put the phone down and they would work it out.  Whew, Luckly after I called the radiology office I called my old PCP's(Primary Care Physician) office and I finally got a copy of this card.  But they sent 2 my really old card and my most recent, I straightened all that out and she gave me a copy to take with me until I get my new cards!  SHEESH!
Now back to the Dr. visit, long story short, they think my glucose levels are too high but are not sure if it is my weight, the steroids or the chemo but I will have blood work done tomorrow but in the meantime I now have a OneTouch Glucose meter and some new meds to take to try to control my levels until we can fully determine which it is and take control of it.  Also, I need to lose weight, a lot of if which will be hard with the steoroids but it needs to happen (NO SHIT SHERLOCK)!!!!  And after this is all over we need to look at these knees, there is something going on there too!  So much great news!  NOT!!!!  Oh, but he did tell me about 2 Presbyterian Churches for me to visit and thanked and said God Bless!  I know I didn't want to hear it but I know it needs to be done so here we go!

Ok, that last was just a vent but hey, it's my blog so I can write what I want to!  LOL

Again I thank you for all your support.  I can not tell you how much I appreciate the calls, texts, cards prayers and well wishes.  If you reach out to me I will give you my new address but I don't want to put it on the blog because it is public.

My next chemo is next week so I will follow up after next week.

SMOOCHES YA'LL!

Tuesday, October 27, 2015

PET Scans, Back to Work and other stuff

First and foremost, the results from my PET scan came back clear or well, the only spot was the new cancer, in other words, the cancer has not spread ANYWHERE ELSE!!!  WOOHOO!!!! 

Soooo....who thought it was a good idea to go to work on the Wednesday, I did.....what a dumb ass!!!!  Well, it wasn't really that bad, imagine walking through a new place in a bubble of cytoplasm or maybe I should say walking through goopity goop in a fog!  LOL, I was tired and in a fog most of the week, but the folks at my new job are nice and understanding.  I came home to crash everyday!  I rode back to Jackson on Friday night sleeping most of the way, slept probably 18 of the 24 hrs on Saturday, and rode back to TX on Sunday, but I stayed awake the whole way!  LOL   Big ups to my lil sis Victoria Honeysucker for being our chauffer to get my mom home and pick up my car. 

This week has been so much better, I'm starting to get into the swing of things at work, not as tired after work but resting because I know I need to.  This weekend I will be attempting to help all those nice folks who have or will volunteer to help me clean and move into my new place.  If you are in the Dallas area and are free to help clean or move please contact me.  You can inbox me on FB, leave a comment or just call or text if you have my number.  All help is welcome. 

I want to also thank my classmate Tracey Magee for hooking me up with Super Realtor Monte Brown who helped me find a nice place. 

Ok, that's all for now I will update again soon! 

Thanks for all the prayers and well wishes, they are working, I'm feeling better, stronger but most of all LOVED! 

Until next time!  Smooches! 

Monday, October 19, 2015

10/19/15 1st Chemo!

Hello all,

So 1st I would like to make a DISCLAIMER:  This blog may include language not suitable for your children.  This blog is probably PG-13 OR R-rated due to language and gross crap the author may say.  Just a warning!

Ok, back to me!  LOL  So I here is a pic of my 1st DIY haircut I did last week.  I will probably do another later I the week, hey it's coming out I may as well have fun and see what all I can do before I move to these fly ass wigs I'm bout to rock!  LOL yes there will be ratchedness in the mix but I will have a normal everyday wig for work with turbans and hats to supplement where needed. 

Here is a link to the photo of the DIY cut https://goo.gl/photos/QQNfX5HwYeB4D8z38

So yesterday I had to start with the steroids, THEY SUCK, jittery, hungry and just feeling crazy!  But its all good, it will be more tolerable with the Ativan they gave me, hehehe, I'll be fine! 

So today started with traffic, I mean it's Dallas by God! Nothing too bad, got here and saw the doctor where she told me all the fun things I can and can't do!  Nothing major just side effects: finger/toe neuropathy (google it if you don't know), nail damage (they may turn dark and even split if I'm not careful), low blood counts, I may be anemic (even before treatment), and the tumor is a 5.3 cm mass and it will be monitored to see if it starts to shrink over these next sessions.  I will have 6 sessions 3 weeks apart so I will have my next treatment on Nov. 12th so Halloween & Thanksgiving I will be up and at 'em! 

Now the fun medical stuff, I am taking Taxotere and Cyclophosphamide (TC) as my treatment regimen.  After my 6 rounds of chemo, I will have axillary surgery of the mass as well as axillary dissection of the lymph nodes they radiation and a new start of a hormone suppressant (Tomoxifen or Arimidex).  So I should be done with all treatment hopefully by Football season I hope if not by my birthday! 

Ok, for those who are wondering if I'm sleeping in my car, I'm not!  LOL  I moved to the DFW (Dallas-Fort Worth) area 2 weeks ago.  I have been living with my wonderful cousins the Degraffenreid's.  Oliver & Brenda have been the ultimate host, accomidating both my mother & I and an occational friend that may stop by.  They live in Forney, TX, right down the road from Jamie Foxx's hometown!  I was listening to Jamie riding down Jamie Fox Way, it was so ironic!  LOL   As of Saturday I was approved for a 3 bedroom house in Mesquite, TX about a 20 minute commute to my job in the Pleasant Grove area (awesome).  I am looking forward to moving into the new place, I hope to pick up keys today, POD will be delivered this week and I will hopefully start getting that together some this week but mostly weekend after this one to come. I have to go to Jackson to pick up my car so I have a little company, it's so nice to have so many friends and family close by, my little sister Victoria is driving up with us on Friday and we will head back on Sunday and we all get to see family and it all works for the best.  My cousin's and a few friends have already volunteered to help with the move the following weekend but I will take all the help I can get.  Especially decorating ladies! 

I am about 30 mins or so out from completing my 1st chemo treatment!  Although I have to drop off money at the leasing agency I can go home and rest the entire day and tomorrow.  Well, except for the injection of Neulasta I will have to get tomorrow which helps to build you blood counts, white counts.  Side effects are muscle and joint pain so my slow ass may get even slower but the doctor wants me to do some form of mild exercise daily so I will be walking or something.  Looking forward to loosing some weithgt but I know the steroids will not allow too much of that to happen. 

I'm sure there is more but I think my first bout of chemo brain may be kicking in so I'm gonna rest for a while.  This has been a long 4 hours.

Thanks for all your good wishes, prayers, hugs from here and far.  I will do my best to keep you posted on all doctor reports and how I feel in general.  You can expect at least weekly updates from this point on.  Love you all and take care of yourself. 

Nina aka Bella(no not the chick who's into pale vampires and buff werewolves, just the chick from the REAL south!  LOL )

Monday, October 12, 2015

The Saga Continues 10/12/15

Hello Friends and Family,

So if you are viewing this blog you are an important person in my life and I want to be able to update you on all the events that are and will be happening with my second diagnosis of Breast Cancer.  Yep, I know, this SUCKS!!!!  Yes this is why I had the surgery so I wouldn't have to go through this again but here I am.  Yesterday, the sermon was about enduring struggle.  The pastor said "You can't have a Testimony without a Test.  Otherwise, it's only a TestiPHONY!!!  (LOL I thought that was so funny!)  So I know that God has something AMAZING in store for me!  Ok back to my news. 

The week before I left VA, I was diagnosed with a Left Axillary Tumor (under my arm).  I met with my oncologist in VA and he came up with a plan and put it all down so that I could take it to a new oncologist.  Upon coming here I was referred to an oncologist here in the Dallas area and met with her last week.  She had almost the same plan after reviewing my scans and records.  He set me up with a surgeon who I see tomorrow.  I had a PET scan today, the radiologist says that I should only be radioactive until about 4pm so hopefully I'm good but I have been wanting to just sing RADIOACTIVE! all day!  LOL  My oncologist (from this point on referred to as Dr. McIntyre, I mean that is her name) should have results in the morning.  She would like me to start chemo on Thursday but waiting on insurance verification and port placement.  Last time I had my 1st chemo without my port but I will be able to answer more questions after my Chemo Class tomorrow I am required to take.  This should be interesting.  So that is all the news I have at this time but check in tomorrow for more info.  I will do my best to keep you up to date on all my adventures in ChemoLand and the adventures that follow, like Surgery State and Radiation World. 

Oh, that's right, some of you may not know, I have moved to the Dallas area.  I am looking for a new place, currently staying with my wonderful cousins who have graciously opened their home to me.  Having only been here a week and a day, I can't say that I love it yet.  As those of you who have read this blog before knows I am often all over the place but after reading you will be pretty well informed and usually entertained. 

So!  Thank you in advance for your prayers, good thoughts, great vibes and telepathic hugs and kisses!  Thanks for all your support through this difficult time and feel free to email (suthrnbella@gmail.com), call, text or Facebook and I will get back to you ASAP, just know that your ASAP and my ASAP my be totally different.  LOL

Smooches!